Building a Stronger Community

2014/2015 ALS

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ALS Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against Amyotrophic Lateral Sclerosis (ALS) and to provide support for clients living with this disease. As a leading not-for-profit organization working nationwide to fund ALS research, along with Provincial ALS Societies, we work to improve the quality of life for Canadians affected by ALS. ALS Canada is purely funded through the generosity of donors.

About ALS Canada

ALS Canada’s priorities are focused on clients living with the disease and funding world-renowned research to find a therapeutic discovery for ALS.  Our client services division provides education, support groups, bereavement groups, equipment rentals and in-house visitation for clients and families to help them navigate their journey through ALS. We have also established strong collaborative relationships amongst community partners in palliative care, hospice, community care and occupational therapy to continue to deliver on quality programs and services.

Advocacy also plays a big role for ALS Canada. Every year ALS Canada amongst leading members in the ALS Community lobby officials in Ottawa for reform to the Compassionate Care Benefits (CCB) policy to aid in the exorbitant financial repercussions clients and families face with ALS.

The organization’s values are rooted in a client-centric model, which is carried through to ALS Canada’s research program. The program hones in on translational science, facilitating basic research discoveries to reach the clinic and ultimately speed up the progression of new discoveries from bench research into human therapy. Our research vision is to develop at least one novel therapeutic strategy through a national network by 2017. 

About the Disease
ALS is a terminal disease characterized by progressive paralysis of muscles throughout the body. Ninety percent of ALS patients die within five years of diagnosis and some in less than one. An estimated 3,000 Canadians have the disease, yet there are currently no effective treatment options. ALS is caused by death of motor neurons, which connect the brain to the muscles. While the specific cause remains unknown, promising discoveries in recent years have provided significant clues that should pave the way for new therapies and an eventual cure.

To learn more about ALS Canada and ALS visit www.als.ca.